Fundamental Facets of Pediatric Hospice Care

Pediatric palliative and hospice care: Pennsylvania's model of collaboration.

In the state of Pennsylvania, a collaborative model has been developed for improving pediatric palliative care and end-of-life care services to children with life-limiting conditions and their families. The inspiration and efforts of several bereaved parents provided the initial impetus for this encouraging model. Pennsylvania's model involves cooperation and collaboration among several groups ...

Hospice care.

Facets Are Fundamental: Rethinking Information Architecture Frameworks

FOR TECHNICAL COMMUNICATION ONLINE This article presents three problems with existing information architecture frameworks.First, they are too focused on organizing information based on topic. Second, they treatfacets as a supplemental form of classification. Third, they conflate the organization andrepresentation of information. Analysis of these three problems suggests thatinfo...

Measuring hospice care: the National Hospice and Palliative Care Organization National Hospice Data Set.

Hospice has seen rapid growth in recent years, but there is a lack of consistency among hospices when it comes to compliance with standards of care. Consequently, hospices vary in performance and in services they provide. With state hospice organizations, the NHPCO developed a National Data Set (NDS) intended to understand demographics, practices, and outcomes; illustrate industry effectiveness...

Physical symptoms of children receiving pediatric hospice care at home during the last week of life.

PURPOSE/OBJECTIVES To identify symptoms of greatest parental concern on the last day and during the last week of their children's lives, the five most common symptoms of parental concern, and symptom-management strategies used during the last week of the children's lives. RESEARCH APPROACH Descriptive, exploratory, and retrospective. SETTING A pediatric hospice program in St. Louis, MO. P...